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Spinocerebellar Ataxia

Spinocerebellar Ataxia

Posted: 30 Oct 2012 1:18AM GMT
Classification: Query
Surnames: BROWN, FOGG, ?
University of Michigan is currently doing a research study on persons with unidentified SCA's. A family here in Maine with the surname of BROWN is currently involved and welcomes any and all family members or other persons trying to identify their hereditary disease to participate.

Re: Spinocerebellar Ataxia

Posted: 21 Nov 2012 12:46AM GMT
Classification: Query
Three people in my family have been diagnosed with SCA1. We attend a support group of 20-30 people with different types of ataxia, including several who have unidentified SCAs. I would be glad to pass along any information you can provide about the study bring done in Michigan. I am sure those with the unidentified ataxias would be very interested. My e-mail is sweeneymike@mac.com. My name, obviously, is Mike Sweeney. I live in St. Paul, Minnesota. The name of the support group is the Twin Cities Ataxia Support Group. Its members include folks from around Minnesota, but most live in Minneapolis and St, Paul.
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