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Izod haemophilia? or Hereditary hemorrahgic Telangiectasia?

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Izod haemophilia? or Hereditary hemorrahgic Telangiectasia?

Posted: 17 Nov 2012 5:37PM GMT
Classification: Query
Recently I have been given an incomplete diagnosis,considered a possible /suspect HHT,also known as Osler/webber /rendu.It is somewhat uncommon,and goes often undiagnosed as the medical community does not know much about it,even specialist(unless specifically in the field of HHT)are unlikely to be aware of the variance in symptoms even within identified HHT patients.Any help would be appreciated.Sone of the more common characteristics are bleeding noses(which I do not have),anemia from blood loss (nose or other within the body),red spots on skin,in mouth,can be anywhere....It is considered a blood vessel disorder and malformations can appear at any time in most any organ of the body,it can be mild or severe.Thanks

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